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Masks Required in Maryland Starting 1/12/2024

Respiratory illnesses continue to increase across the nation, resulting in rising hospitalizations. Effective 1/12/2024, mandatory masking will resume for patients, visitors and employees in all Johns Hopkins Medicine locations in the state of Maryland. Masking is required regardless of vaccination status. Read more.

Neurology and Neurosurgery

Comprehensive Neurofibromatosis Center

Expert Neurofibromatosis (NF) Care


About Our Center

If you or a loved one are living with any form of NF, you understand that it can be a challenge to find one center with all the specialty expertise NF demands. The Johns Hopkins Comprehensive Neurofibromatosis Center unites these services under one roof, offering patients a coordinated, one-stop shop for NF care.

The Johns Hopkins Comprehensive Neurofibromatosis Center

Request an Appointment

In-person and telemedicine appointment options are available for initial consultations and follow-up care. Learn more about appointments and referrals.

For patients with suspected NF1 to schedule a genetic evaluation:

443-997-1439
Genetics Clinic

For patients with confirmed NF1, and those with suspected or confirmed NF2 or schwannomatosis:

410-614-3853
Pediatric Patients

410-502-6732
Adult Patients

Our NF Care

Our multidisciplinary clinic combines the expertise of pediatric and adult neurology, neurosurgery, neuro-oncology and genetics.

PATIENT STORYPedal to the Medal

The Comprehensive Neurofibromatosis Center uses an innovative funding approach to advance research and speed treatments for patients. Meet two of our patients, identical twins Tamika and Laticia, who have been part of our clinic for over a decade, and read more about our approach to research and care.

Read their story
Tamika leaning on her sister Laticia's shoulder

Health InformationConditions We Treat

Our multi-specialty clinic combines the expertise of specialists in pediatric and adult neurology, neurosurgery, neuro-oncology and genetics. Learn about neurofibromatosis and its different types in our Health section:

Strand of DNA

In The News Dr. Carlos Romo and Marcus Ratley on Overcoming Neurofibromatosis

Dr. Romo and Marcus, who's been living with NF1 for a long time, speak with CBS News about this condition.

Watch the news segment

Fellowship TrainingNeuro-Oncology Fellowship

Together with the National Institutes of Health (NIH), Johns Hopkins offers a two- to three-year neuro-oncology fellowship. This program is available to all M.D. graduates with at least one year of postdoctoral training toward board certification in their sub-specialty.

Each fellow undertakes a unique program that can be tailored to suit the trainee's interests and career goals.

More about the neuro-oncology fellowship
Three medical trainees discussing a case
Children's Tumor Foundation logo

Children's Tumor Foundation

The Johns Hopkins Comprehensive Neurofibromatosis Center is designated as an affiliated clinic of the Children’s Tumor Foundation, a collaborative network of NF treatment centers, research institutions and community groups. The Children's Tumor Foundation works to fund critical research needs and improve the lives of those with NF.

Patient Resources and Support Groups